Introduction
It's been more than seven months since I published an article on this blog, a record for inactivity on my part. This piece is a "random musings" kind of article, it will contain headings naming the topic and a paragraph or two about the idea as I've done in musing articles in the past.
The reason for my absence from writing the blog, attending any sort of disability related event, falling out of touch with a lot of my personal and professional contacts and doing very little activism related to blindness is entirely in the realm of my personal life and that I've been spending my time trying to help a very sick friend as best as I can as she struggles to live with an exceedingly rare form of cancer. This entire event has been hard on all involved and, when I'm not actually with my friend, I'm often feeling burned out emotionally and intellectually so writing anything of merit has been nearly impossible for me as the words simply do not come to me. I'm enjoying a break in my Florida home and found I had enough energy to write a bit this morning.
I have three articles written by other authors that will be published here as guest posts relatively soon. These have been sitting gathering dust in my articles folder for months and all I need to do is make sure the Markdown is correct and post the pieces. I found them interesting and I hope you, my loyal readers, do as well. If you're interested in writing a guest post for this blog, please send me a pitch via the contact form on this site and maybe we can work together on something cool.
I will make a more concerted effort to write more articles myself and publish them as I have in the past. I can't guarantee anything but I've a number of ideas with some big ideas behind them and a few that i'd just enjoy writing as I think they're interesting ideas that I'd enjoy exploring further. One factor that slows me down is that I do all of my own research and, on a couple of the big ideas I have for articles, I've simply not the time to do all of the googling, copying and pasting of actual data and ensuring it's all correct before publication. If any of you readers are interested in helping out as a research assistant, have good web searching skills and would enjoy helping me work on some research, please send me a note through the contact form. I don't even have a "Donate" button on this blog so this role will be unpaid but will certainly include very public acknowledgement and may be useful as a line item on your resume.
Lastly, before I go into my musings, I'd like to suggest that those of you who've followed my work on the ADA trolling situation take a look at Karl Groves' blog as he's continued covering the story after I had grown tired of just saying, "It keeps getting worse." Karl runs Tenon.io, one of the best automated web test tools out there and has been following the trolling with interest for quite some time now.
The reader should also note that this article is a bit less formal than some of my others. I do not include outlinks to various things I mention and the this is an opinion piece written mostly off the top of my head. If you find a factual error, please do point it out and I'll fix it but forgive me for the mistake as I wrote this from memory.
ADA Trolling
As I mention immediately above, I've given up on closely following the events surrounding the ADA trolling situation going on around the nation. All I can add is that it continues to get worse, people send me emails showing me yet another lawyer jumping onto this gravy train every now and then but there's nothing I can write about them other than, "here comes another one, just like the other one." As I've written before, I believe this trolling is the single greatest threat to the ADA itself going on today: a crackpot attorney like Rosales in Texas sends a threat letter to a small business, the businessperson picks up the phone and calls their chamber of commerce who, in turn, call the local congressperson who will then act to weaken ADA. In a Lainey Feingold structured negotiations approach, the businesses are treated fairly and, given the track record of success Lainey has had, it's the right way to get this enormous job done.
One possible thing we can do as blind individuals to fight this problem would be to challenge the certification of a class in these class action suits. I don't know how to do this (I ain't no attorney) but, if these corrupt lawyers are claiming to represent all of us which prevents any of us from taking legal action against the defendant in the future, we have the right to tell the court that, as members of the class they're trying to have certified, we object to the drive by lawsuit being perpetrated by lawyers like Carlson, Dinin and Rosales. Perhaps someone with a legal background can suggest ways we may be able to disrupt the trolls as I've no clue what else to recommend.
The FaceBook Scandal
My good friend and father of the free, libre open source software movement, Richard Stallman has been using the phrase, "with FaceBook, you're not a user, you're a used," for at least a decade at this point. In the past few weeks, we've heard Apple CEO Tim Cook repeating the phrase, "on FaceBook, the users are the product." It's surprising when an Apple CEO parrots the statements of one of their most notable critics but it also causes me to ask the question of Cook and the other luminaries speaking out about FaceBook recently, "What took you so long?" The privacy implications of FaceBook have been apparent for many years, a technology executive like Cook would understand immediately how risky using such a service is but remained silent until the story was attached to the Russia investigation and President Trump's campaign.
I suppose I'm trying to say that statements from Tim Cook and others about FaceBook have all come too late to be of any actual value. If people like Cook had warned the world about the privacy issues regarding FB many years earlier, the outcomes may have been different but, with Stallman being outwardly mocked for discussing "treacherous computing" and warning the public about the risks of big data for years standing largely alone on this issue, I think history could have been different had Cook and the others joined rms years earlier. Their more than a decade of silence permitted FaceBook to get what is perhaps an insurmountable lead over those who would place their own personal privacy ahead of FaceBook's profits.
2017 In Review
Historically, I've published a end of the year article discussing the blog that year and making some predictions for the year to come and published such in December. As I've not written anything for publication in seven months, I missed December this year and received a handful of emails from readers disappointed that I didn't do one last year. Thus, I'll toss in a few bullet points about the blog last year and make a couple of predictions here.
The 2017 Numbers
- Although I published only six new articles in 2017, the overall unique hit count for the blog set an all time record with more than 50,000 different users visiting the site.
- The most popular article I published in 2017 was "NVDA: Now More Than Ever" which pulled down more than 10,000 unique hits which would have been a record for any article I had ever published in its first year online.
- The article "Testing Android Accessibility: I Give Up" which has been online for a number of years broke 55,000 total hits since it was first posted. This kind of makes me sad as it's an old article containing old information. I've not tested the accessibility of an newer Android device and assume the team over at Google has made substantial progress since this article was first published.
- Other perennial favorite articles like "Death Of Screen Reader Innovation" and "What Did I Just Agree To" also pulled down a large number of hits in 2017 and both have received more than 40,000 hits since their original publication.
- Far more people found the blog via search engines than through my promotion on Twitter and FaceBook. Twitter still brings in the most early readers of an article but the older ones are found by people searching for information about my topics.
Some Predictions
- Last year I predicted that VFO would deprecate both Window-Eyes and MAGic. I was right when they killed Window-Eyes but MAGic seems to still be hanging on. I'm assuming MAGic still communicates directly to JAWS and that the two probably work well as a pair. I'm going to again predict they deprecate MAGic as I'm willing to bet they've been working on ZoomText and JAWS compatibility pretty hard for the past year or so.
- I'm willing to predict that the accessibility on Amazon's tablets improves greatly this year and may even be good enough to give Apple a run for its money.
- The ADA trolling situation will continue to get worse and I can see the possibility of Attorney General Jeff Sessions getting involved on the anti-accessibility side of the debate, perhaps even fling a letter of interest in some cases supporting the defendant. Sessions is opposed to ADA, IDEA and probably other laws protecting our rights and has said, that such "give special rights to a specific class" meaning in brief that requiring a school district to get a screen reader for the blind kid is somehow exceptional and should not be required.
- I predict Microsoft releases at least one more very impressive accessibility oriented app based in some kind of artificial intelligence system.
Where Does All The Money Go?
One of the research projects on which I could use some help intends to add up all of the money contributed to blindness related non-profit organizations in 2016 (the most recent year for which we've 501)c)3 filing information), how much the organization spent that year and the total sum of dollars in their endowments. I would like to present this information in a tabular format showing which organizations have the most money in the bank. From my initial look into this information, I was surprised by the huge sums of dollars that are in the endowments of some of these organizations. I ask the question, "Why is all of this financial power sitting on the sidelines invested in everything from a stock portfolio to incredibly valuable real estate and not working for the people said non-profit organizations claim to represent?" I'm not a financial idiot, I understand that a non-profit does need to have a healthy endowment to ensure its future but, based in my limited research, the dollar value of these endowments are at a point in which I believe they are excessive. My first reaction is that these organizations are more interested in growing their endowments than they are in constituent services.
Putting the size of the endowments into perspective, it would have been easy for some of these organizations or a group thereof to have acquired Freedom Scientific outright and made sure JAWS and its other products were developed with user needs placed ahead of profits. The blind community or one or more of its proxy organizations could be calling the shots on both software and hardware but, instead, the money is invested in Manhattan real estate to help grow said money in the bank.
If I can get the research done, we'll publish a list of all US based 501)c)3 non-profit organizations claiming to do something for the community of people with vision impairment (there are more than 50 with LightHouse in their names alone) and rank them based on how much of their organizational wealth they spend on actual services for blind people and how much goes to pad their endowments. From what I already know, I am pretty sure you will be surprised by just how much money was donated by well meaning contributors to these organizations that does nothing more than make the organizations themselves wealthier. It seems to be a sad state of organizational ego seeming to be more important than services for the community.
70% Unemployment
When I first went to work for Henter-Joyce, I was told that there was an estimated 70% rate of unemployment among people with profound to total vision impairment; twenty years have passed since that day, technology products are far more accessible than they were two decades ago but the rate of unemployment among working aged blind people remains at 70%. Ted henter and the rest of our crew honestly believed that if we could make the accessibility good, the jobs would follow; apparently we were very wrong.
I've been looking at the employment issue in our community for the past two decades and, frankly, find it to be the most perplexing collection of problems I've ever tried to comprehend. Intellectually, I started this journey sitting on Ted's knee and worked to make JAWS and the other HJ/FS products as good as possible but it turns out the technology wasn't the solution to the issue in seven out of ten cases. I then looked at education and, while there are massive problems educating blind people, I also found quite a few who worked really hard to get a degree from a top university who are, for all intents and purposes, unemployable today. We thought that bad over protective parenting could be the problem but we've found some blind people whose parents did everything the "right" way who never found their way into an employment situation and others with overbearing parents who turned out to be successful as adults.
In brief, we do not know much about why we cannot move the employment numbers at all. Worse, I think we leaders, thinkers and others in this field know a lot about the 30% who do work but we have little to no contact with most of the 70% who live on government benefits. I propose that someone with a background in a social science embark on a massive research effort to first learn as much as we can about the 70%, determine what they would need to obtain gainful employment, formulate a long term strategy and implement a strategy to reduce this deplorable level of people outside the work force. I do not understand why Braille Monitor and other publications in this space spend so little time discussing the employment problem, proposing ideas for how to tackle the problem and working towards the goal of full employment for our community. If NFB and these other organizations truly value independence, they should recognize that economic independence is often the most important part of an independent lifestyle.
The Call Center Gambit
Continuing on the theme of employment, I felt I should mention a situation where good intentions led to a very bad outcome. Years ago while I was still VP/Software Engineering at Freedom Scientific, we recognized that one part of the employment issue related to blind people is that few entry level jobs are compatible with blindness. A blind person cannot stuck shelves at Wal-Mart, they can't take orders at McDonald's, they can't dig ditches. Blind people can use computers and answer telephones and we, along with a number of others in the blindness biz, bet heavily on call centers being the entry level jobs for blind people. Two big companies (Home Shopping Network (HSN) and MCI/Worldcom) published articles showing how their blind employees outperformed their sighted colleagues in these jobs and it appeared that this was an obvious path to follow.
But, We didn't count on the outsourcing and automation of call center work. Years ago, we worked directly with huge call centers making sure blind people could use their software and do their jobs. Then, the call centers went to India and other places where people speak English reasonably well but cost profoundly less than even a blink in the US at the same time as voice recognition and automated bots were able to handle a lot of call center work with no humans involved at all. Some call centers remain in the US but most of these are either phone sex or outbound hot house scam artists. I knew a blind gal who did the phone sex thing at a center in Tampa but I've yet to meet one workin with the con artists selling bogus insurance to old people.
Equalizing The Meaning Of Oppression
When the United Nations launched its convention on human rights and dignity for people with disabilities, they did so with the statement, "People with disabilities are the single largest and most oppressed minority on Earth." I repeated this quote many times but recently have been rethinking the value of ranking one group's feelings of oppression with another. Oppression is oppression whether it's a toddler in Africa sent home to die from retinoblastoma rather than growing up with the shame of blindness or it's an young unarmed African American male shot with fifty bullets for taking a cell phone out of his pocket.
There are some unique characteristics that we as people with disabilities have as a minority that other minorities do not: we're oppressed not just by the powerful but by other minority groups as well, we intersect with the powerful as well as every other minority and, in the US, we've fewer constitutional protections than do those without disabilities. But, all minorities have their own unique characteristics and, in my opinion, we'll never move the ball forward on minority rights, let alone disability rights until we set aside the unique features of the different groups and work toward a common goal of an equitable society that welcomes all based on the content of the character.
I guess I'm trying to state that saying that one group is more or less oppressed, that one group has suffered more or needs more protection than do other minorities, all we succeed in doing is helping the powerful divide and conquer a diverse set of groups by refusing to work in coalition due to our perceived exceptionalism.
Conclusions
There isn't much one can conclude from an article like this. I suppose I can say that the biggest take away I have from the past couple of years is that we don't understand our own community nearly as well as we may have thought, that many of the non-profit groups representing blind people seem to place their institutional ego ahead of their constituents and that we, as a community, need to seize the day and take more control of our own futures.
–End
Carlito says
Here’s something I found about blind people not having jobs or wanting one.
https://nfb.org/images/nfb/publications/bm/bm09/bm0903/bm090307.htm
Cody Hurst says
Chris, I certainly don’t know you personally and I stay quite far away from the blindness community as a whole. But by God, every comment I would have left in this box you essentially hit with everything you have said and so I can’t think of anything more to add other than, man, you are so completely 110% on target. I have often thought, as I vent and rant to my disabilities office at my community college, that a handful of folks such as you or I must get together and form an organization with a specific goal in mind. Of course we can talk about all the facets of why we are the way they are. Of course we all know it is divide and conqur tactics we see more in our face like black against white and so on. I am willing to bet that a majority of the 70+% of those who are blind and unemployed or whatever the numbers might be are strong democrats, as I’m sure they believe by not being one they somehow feel they are going against the government benefits they seek to keep. By no means am I segwaying into getting political on here, but I do think that even many of those who may be democrat, and I myself am not, often times voice similar issues as you and I have for years. But it is the larger picture and the essence of what the leftist idiology stands for and it continues to get more and more radical as time pushes forward. I fear that those who are not engaged in society and lap up whatever they are told, I.E. the 70% there isn’t much hope for change. The zone BBS was exemplory of this attitude. I always say that you only get flack when you are over the target. Blogs like yours should have thousands of views. Your articles should be splattered on every other site out there. To fix this problem, I do think it starts socially and at an early age. Schools in Texas are considering, last I heard, to remove Hellen Keller from the coriculum. Early education is important, as it sets the pressident for how citizens will view the world in which they live. I am in a situation now where though I have a 2 year general studies degree, nothing special by any means, I am constantly told that without at least a bachelors or a masters, I’ll have no chance of doing anything. Thus I am back in school and it will be yet another 2 years before I can find an internship. I did have 1 “job” if you could call it that working for my school district, but was let go after 6 months as the democratics legislature threatened the public employee retirement funds stating people made too much money, which prompted a lot of folks working for the special education department to retire early and so funds were cut. A quick word about this so called job I had. The only reason I even had this so called job was because my counselor at the commission for the blind told me the district needed someone who could help out with Braille material conversion. I agreed. These teachers I worked with had no clue about NVDA and besides not having time to actually prepare materials, were not very technically adept themselves. How was I compensated? Well, the counselor at the commission made a deal with a temprary agency which catered to folks with disabilities. But the district who I actually worked for, had me registered as a volunteer. So I had to call the commission for the blind every Friday to clock in my hours. There were weeks they didn’t do their job and never got paid which also meant that because my check was compounded, more taxes were taken out. I got screwed in the end. 6 months later, I was let go, and after reporting to social security my pay stubs, they hit me with a $900 over payment. I was absolutely furious. I thought to myself, how can this be, I paid my taxes. SS charged me based on the net total, before taxes, maybe it is gross I can’t remember, but the point is, I was penalized for paying my taxes. When I got my tax return, they expected me to hand my return right over to SS. To hell with them I say. You might wonder if I have heard of, or am part of, the ticket to work program. Yes, but because the position I had was such a cluster, it was orchestrated in such a way where my 9 months of trial work weren’t used and so it did not apply since the state was paying me. Rather than paying the $900, I went to ss and told them to take out only $10 of my SSI per month and a month later, I signed a paper, then received a letter saying they were going to take out 10% of my check, which is not the same as $10. So I don’t have high hopes for my future unless I do something for myself. I’m a musician, I do web development, and i’m going to class to maybe get some sort of web dev or Cisco degree. These blind agencies are under staffed, have too many clients and fail to communicate at all with anyone and do everything in their power to not buy you things you need. They purchased me a 2015 Macbook Pro and told me if I didn’t have a job by a certain date I’d need to give this machine back to them. Something is really fucked up with this picture. But, again, too many people don’t want to think about it and so they say “oh well, what else are you going to do about it?” Who really knows anymore. I do think taking a good look at the current state of afairs in this country will give you a good idea of what the left’s priorities are and the dirty tricks they like to play. This mindset extends to every and all microcosms. With little voice, these fenominon are here to stay. It is 7 million of us verses 350 some odd million of them. So just remember, when the teller at the bank looks at some guy standing behind you when you’re trying to talk to them, or when the cashier at the local Walmart hands your change to someone else next to you simply because they are standing there so therefore that means they are automatically associated with you, or if a homeless guy comes up to you and asks if blind jokes offend you, or if your neighbor tells you that she saw you walking with your caretaker, ask yourself if you are really that unique to have these experiences or if it is part of a larger societal problem. Ask yourself how someone in customer service actually got their job. Break the stigma, expose the truth.